The Sweet Family in Western-Super-Mare are happy and truly inspirational in their close-knit community. Louisa aged 14, Max aged 11 and Harry aged 6 were born healthy and family life was good until Harry was diagnosed with a genetic condition called Ehlers Danlos syndrome. The family have been struggling with Harry’s health issues for the last 3 years, then in 2017, after genetic testing, Louisa then 12 and Max then 9, were diagnosed with Friedreich’s Ataxia, a rare and neurodegenerative life limiting Neuromuscular condition, for which there is currently no treatment or cure.
All three children now struggle with basic normal life at home, unable to undertake simple tasks without help and with Louisa rapidly losing her teenage independence instead of gaining it, despite the immense love and care from their inspirational parents Cat and Chris so that’s why DIY SOS and the local kind volunteers are stepping up to help this truly deserving family.
